OTHERSIDE
2025
Making space for people living with epilepsy
Debuting at NEEC | September 4–6, 2025 | Boston
Part gallery, part café, part connection hub—the Otherside Lounge is an in-person, pop-up space for people with epilepsy to connect, be heard, and create community at cities and conferences worldwide.
AN EXPERIENCE LIKE NO OTHER
For people with epilepsy. By people with epilepsy.
Welcome to the Otherside Lounge.
Join hundreds of people living with epilepsy, and dozens of the world’s best epilepsy clinicians and researchers, for conversation, community, and celebration – all centered around the lived epilepsy experience. Your experience. Our experience.
Launching in Boston, Sept 4-6, at the New England Epilepsy Convention.
Coming soon to a city near you.
Sounds of the Lounge
(Jimmy Reed, Neil Young, Fleetwood Mac, Joy Division, Prince,
Beastie Boys, Lil’ Wayne…)
Part gallery, part café, part connection hub,
the Otherside Lounge has something for everyone.
Why it matters
Find your epilepsy community
When people with epilepsy get to know other people with epilepsy, something incredible happens—and ultimately, we can see better health outcomes. And there’s evidence to support this.
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Why? Because when people with epilepsy are more engaged with their health, they make better choices about their health – whether that means remembering meds, advocating for better care, or simply making better wellness choices.
Shape the future of epilepsy care
Too often, we’re invited into the room but not into the conversation. Our stories are filtered, translated, or flattened. Yet no one knows epilepsy quite like you know epilepsy.
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Your experience – the lived experience – can and should be shaping the future of epilepsy care.
The Otherside Lounge creates real space for real voices—unfiltered, unedited—to uncover truths that don't show up in the data. Here, epilepsy healthcare leaders are listening to your expertise.
Tell the other side of the story
Epilepsy doesn’t just challenge us. It also transforms us. It creates people with powerfully unique world views—perspectives shaped by a condition that has divided human society for over 4,000 years.
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The Otherside Lounge is where we celebrate that greatness—the quiet power, the everyday resilience, the hard-earned wisdom of living with epilepsy.
Here, we control the narrative – shaping a stronger story of what it is to live with epilepsy in the modern world.
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AFTER THIRTY YEARS OF KEEPING MY EPILEPSY TO MYSELF, I FINALLY HAD A CONVERSATION WITH SOMEONE LIVING THE SAME EXPERIENCE.
IT WAS ONE OF THE MOST SURREAL AND MEANINGFUL MOMENTS OF MY LIFE.
EPILEPSY UNITY
Community Partners
The Otherside Lounge is for everyone affected by epilepsy, but especially:
People Living with Epilepsy
Friends, Family & Advocates
Clinicians & Researchers
Innovators & Believers
BOSTON 2025
Made possible by the following sponsors
SPONSOR THE LOUNGE
Join us in making space for people living with epilepsy everywhere—and putting the lived, human experience at the center of everything we do.
“We’ve been looking for something like this for a long time—a scalable system to invite patients into all of our industry’s most critical conversations.”
Request more information here
— CALLING ALL —
OUTSIDERS
You know it better than anyone.
Epilepsy has a long history of being stigmatizing and isolating. For thousands of years, society has discriminated, persecuted, and alienated people with epilepsy.
Here, you’re an insider.
Join us to connect with one another, learn from one another, and be heard in a space like no other.
REGISTER OR GET IN TOUCH
Please complete the form to connect with us or register for the lounge.
Data Privacy Policy
We are committed to protecting the privacy and confidentiality of all personal information collected or shared. Any data obtained will be handled in compliance with applicable privacy laws and regulations.