OTHERSIDE
2026

Making space for people living with epilepsy

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Part gallery, part café, part connection hub—the Otherside Lounge is an in-person, pop-up space for people with epilepsy to connect, be heard, and create community at cities and conferences worldwide.

Upcoming Lounges

Nov. 16-17, Anaheim, CA
| Epilepsy Awareness Day Disney

Dec. 5-6, Denver, CO 
| American Epilepsy Society Annual Meeting

Early 2027, Boston, MA | New England Epilepsy Convention

WHAT IT IS | WHY IT MATTERS | STAY UPDATED

AN EXPERIENCE LIKE NO OTHER

For people with epilepsy. By people with epilepsy.

Welcome to the Otherside Lounge.

Join hundreds of people living with epilepsy, and dozens of the world’s best epilepsy clinicians and researchers, for conversation, community, and celebration – all centered around the lived epilepsy experience. Your experience. Our experience.

Coming soon to a city near you.

Sign up for updates

“

AFTER THIRTY YEARS OF KEEPING MY EPILEPSY TO MYSELF, I FINALLY HAD A CONVERSATION WITH SOMEONE LIVING THE SAME EXPERIENCE.
IT WAS ONE OF THE MOST SURREAL AND MEANINGFUL MOMENTS OF MY LIFE.

Part gallery, part café, part connection hub,
the Otherside Lounge has something for everyone.

Why it matters

Find your epilepsy community

When people with epilepsy get to know other people with epilepsy, something incredible happens—and ultimately, we can see better health outcomes. And there’s evidence to support this.

  • Why? Because when people with epilepsy are more engaged with their health, they make better choices about their health – whether that means remembering meds, advocating for better care, or simply making better wellness choices.

Shape the future of epilepsy care

Too often, we’re invited into the room but not into the conversation. Our stories are filtered, translated, or flattened. Yet no one knows epilepsy quite like you know epilepsy.

  • Your experience – the lived experience – can and should be shaping the future of epilepsy care.

    The Otherside Lounge creates real space for real voices—unfiltered, unedited—to uncover truths that don't show up in the data. Here, epilepsy healthcare leaders are listening to your expertise.

Tell the other side of the story

Epilepsy doesn’t just challenge us. It also transforms us. It creates people with powerfully unique world views—perspectives shaped by a condition that has divided human society for over 4,000 years.

  • The Otherside Lounge is where we celebrate that greatness—the quiet power, the everyday resilience, the hard-earned wisdom of living with epilepsy.

    Here, we control the narrative – shaping a stronger story of what it is to live with epilepsy in the modern world.

GET IN TOUCH

Please complete the form to connect with us or register for the next lounge.

Data Privacy Policy 
We are committed to protecting the privacy and confidentiality of all personal information collected or shared. Any data obtained will be handled in compliance with applicable privacy laws and regulations.

EPILEPSY UNITY

Community Partners

The Otherside Lounge is for everyone affected by epilepsy, but especially:

  • People Living with Epilepsy

  • Friends, Family & Advocates

  • Clinicians & Researchers

  • Innovators & Believers

— CALLING ALL —

OUTSIDERS

You know it better than anyone.
Epilepsy has a long history of being stigmatizing and isolating. For thousands of years, society has discriminated, persecuted, and alienated people with epilepsy.

Here, you’re an insider.
Join us to connect with one another, learn from one another, and be heard in a space like no other.

2025 SPONSORS

Epilepsy Awareness Day Disney 2025

Made possible by the following sponsors

Anaheim, November, 2025

Boston, September, 2025

Sounds of the Lounge

(Jimmy Reed, Neil Young, Fleetwood Mac, Joy Division, Prince,
Beastie Boys, Lil’ Wayne…) 

©2026 OTHER SIDE EXPERIENCE LLC. All rights reserved.